Tammy Moore is married to Johnny Moore and is the mother of three adult children. Her youngest child has was diagnosed with Costello syndrome just before her second birthday. There were only approximately 18 known people with Costello syndrome when Tammy’s daughter was diagnosed, so very little was known about it at that time. A couple of years later Tammy found a family who lived in the United Kingdom who also had a daughter with Costello syndrome (CS). They chatted through an online chat group called “Our Kids” for some time then decided to start a support group for families affected by CS. In 1999, Tammy chaired the First International Costello Syndrome Conference in Birmingham, AL. Families came from around the world to finally make contact with other families who had the rare syndrome in common. Most, if not all, had never seen another person with this rare syndrome. Tammy has remained on the Costello Syndrome Family Network board and has chaired many of the conferences that the organization holds in various locations throughout the USA every other year since 1999.
And so the journey started! That first conference was held at the Children’s Rehabilitation Service (CRS) building in Homewood where Tammy received much help and support from the staff. In 2001 Tammy became the Parent Consultant for CRS Homewood/Birmingham and was later promoted to Regional Parent Consultant serving the northern part of the state. As Parent Consultant she served families with children with special healthcare needs from around the state sharing her experiences as a mother and supporting them with information, resources and encouragement. Tammy worked side-by-side with families individually, in clinics, through presentations and training, offering guidance and sharing experiences. As Regional Parent Consultant, Tammy continued her district duties while providing training, technical support and encouragement to the Parent Consultants in her region.
The Full Life Ahead Foundation became a part of Tammy’s life when she felt that she needed someone to come in to help advocate for her daughter in school. Tammy credits The Full Life Ahead Foundation for getting the school staff to see her daughter’s strengths and potential, leading to her being given the opportunity to learn to read. The Full Life Ahead Foundation stepped in again years later, to encourage, support and connect Tammy’s daughter as she looked for and succeeded in getting her first job which she has had for several years. In September 2014 Tammy was honored to take on the position of Executive Director of the foundation. Her experience and ability to relate to others has made her a sought after speaker for state and local agencies.